Tuesday, September 16, 2014

Happy 11th Birthday!!

 Happy 11th birthday to my Awesome Austin!!! He wanted a cake with an erupting volcano. 

Tuesday, July 1, 2014

Trying out the PIV idea

This month to draw Austin's labs I took him to the Peds floor so Michael and Jason could show him that a PIV wasn't so scary. Michael distracted Austin with the iPad while Jason drew the blood. It worked very well despite Austin's lack of enthusiasm.  From now on we will just go to the lab to have Austin's CBC drawn. We will miss Michael and Jason but I won't miss the all day marathon doctors appointments every month.

Monday, June 23, 2014

Physical Therapy

I noticed back before Austin was diagnosed that always walks on his toes. So I decided to take him to a Physical Therapist to see what can be done.  I'm worried that surgery will be the ultimate answer but first I want to try everything else.  The therapist measured Austin's stretch in his feet and legs and gave him some exercises to try. Austin just likes the ball pit.

Monday, June 9, 2014

Camp Hobe

Our second trip for the week was to take Austin and Madison to Camp Hobe.  They have been looking forward to going back after having so much fun last year. It's a very fun, busy week and they love it. I missed them like crazy but it was much easier to drop them off this year. 

Thursday, June 5, 2014

PIV time

June's clinic visit was the first of three trips to Salt Lake in one week.  Austin and I made this trip by ourselves. This time they couldn't get Austin's port to work at all so a peripheral IV was placed in his hand. Austin hated it but we didn't have much of a choice. We have finally had enough of the dumb port so the plan will be to remove it in August during his next visit. Between now and then I get the chore of convincing Austin that periphreal IV's are not all that bad. Yeah right, wish me luck.

Saturday, May 31, 2014

Egg Rolls

August 28, 2012 was the last day that I made egg rolls for dinner. It was also the night that we found out something was very wrong with Austin's health. I was making the egg rolls as I answered the phone from our Pediatrician and was told to drive Austin to Primary Children's right away. I don't remember turning off the fryer, I don't remember cleaning up the mess. I do know that those egg rolls were not eaten that night. Instead, I rushed around the house packing as fast as I could with so much fear in my heart. All of these memories came flooding back tonight as I was making egg rolls on a very different night. On this night my little family was gathered around the table with smiles and the happy noise of children instead of tears and fear. I'm so grateful that Austin is doing well with his treatment. As silly as it is, I think egg rolls will always hold a special place in my heart.