Tuesday, July 1, 2014
This month to draw Austin's labs I took him to the Peds floor so Michael and Jason could show him that a PIV wasn't so scary. Michael distracted Austin with the iPad while Jason drew the blood. It worked very well despite Austin's lack of enthusiasm. From now on we will just go to the lab to have Austin's CBC drawn. We will miss Michael and Jason but I won't miss the all day marathon doctors appointments every month.
Monday, June 23, 2014
I noticed back before Austin was diagnosed that always walks on his toes. So I decided to take him to a Physical Therapist to see what can be done. I'm worried that surgery will be the ultimate answer but first I want to try everything else. The therapist measured Austin's stretch in his feet and legs and gave him some exercises to try. Austin just likes the ball pit.
Monday, June 9, 2014
Our second trip for the week was to take Austin and Madison to Camp Hobe. They have been looking forward to going back after having so much fun last year. It's a very fun, busy week and they love it. I missed them like crazy but it was much easier to drop them off this year.
Thursday, June 5, 2014
June's clinic visit was the first of three trips to Salt Lake in one week. Austin and I made this trip by ourselves. This time they couldn't get Austin's port to work at all so a peripheral IV was placed in his hand. Austin hated it but we didn't have much of a choice. We have finally had enough of the dumb port so the plan will be to remove it in August during his next visit. Between now and then I get the chore of convincing Austin that periphreal IV's are not all that bad. Yeah right, wish me luck.